Asociación de Síndrome Miastónico Congénito

English - Español
Contact with us:
Phone: +34 699 66 44 84

Main Goal

To foster knowledge and communication about the disease.

With the intention of reaching all non-diagnosed affected people so that they can be treated adequately.

Dossier ASMIC

To the attention of affected
babies' parents

Most likely, by the time you have found about us and made up your mind to get in touch with us, you have already endured some hard experiences filled with incertitude and worry, when not anxiety or fear for your most beloved one: your baby...

For parents
and children

You might have not been diagnosed yet, since not everybody is diagnosed at an early age. Sometimes, the CMS manifests in a way and sometimes it does it differently, sometimes it appears during the growing stage and sometimes at a very young age...

For youngsters
and adults

Dear friend: We can imagine the long and tortuous road that led you to that moment in which, somehow, you managed to get your disease named. We can also imagine how much you have suffered...

Member of:

ASMIC is an association member of FEDER.

Welcome to ASMIC website!

Rogelio Lozano (President)
You are Welcome to ASMIC.
Association worldwide pioneer in attending those specifically affected by CMS. If you are affected, parent or legal guardian of an affected child, you can contact us and join as a full member. In any case, everyone is welcome as benefactor member. Most important, now you know that you are not alone and we are happy to be at your disposal.
Developing all kind of actions
Aimed at improving the quality of life of CMS patients and their relatives.
Informing and raising awareness
within both society and public institutions in order to guarantee the integration of this collective in all areas of life.
Research lines
Helping the opening of new research lines or the progress of existing ones, with the object of finding new drugs that may make the condition more liveable and making the most of new genetic therapies.
Meeting point
For all affected people and their families, constituting a hub for debating all aspects of the disease.
Creating an alliance
With the rest of kindred organizations on a Spanish, European and worldwide scale.
Organising all type of activities
Brought up by the members and with the approval of the General Assembly, that could maintain and boost the life of the association.